I am going to talk about epilepsy again

This morning I sent E's medical records to the Epilepsy Genome Phenome Project. All her old EEG reports. They start off horribly, "Six month old baby with generalized epileptiform activity. Hypsarythmia- the worst EEG pattern you can have. It still stops my heart to read them. The very last page of E's records still brings tears to my eyes, though. After many medications and two years of the ketogenic diet, the report reads simply, "Normal EEG".


The Epilepsy Genome Phenome Project is a far-reaching epilepsy study going on right now. They are especially intrested in recruiting people who have had infantile spasms. I believe so strongly in participating in medical research. This could lead to manifold benefits for the epilepsy community. please participate if you can.